{"id":136,"date":"2018-03-08T05:00:42","date_gmt":"2018-03-08T05:00:42","guid":{"rendered":"http:\/\/lipstickliesandlupus.com\/main\/blog\/?p=136"},"modified":"2018-03-08T00:25:06","modified_gmt":"2018-03-08T00:25:06","slug":"button-button-whos-got-your-button","status":"publish","type":"post","link":"https:\/\/lipstickliesandlupus.com\/main\/?p=136","title":{"rendered":"Button! Button! Who\u2019s Got Your Button?"},"content":{"rendered":"

Buttons. Buttons. We all have buttons, but do you have more buttons available for pushing because you live with lupus?<\/p>\n

Do you react strongly when people question your right to park in a disabled parking place because you don\u2019t look<\/em> disabled?<\/p>\n

Do you anger having to explain your condition or needs to unknowing physicians simply to get treatment you have a right to?<\/p>\n

Do you try to control your reaction yet fail most of the time<\/p>\n

\"\"
My button<\/figcaption><\/figure>\n

So much of the time I don\u2019t even try to explain. I either answer with a direct hit for the stupidity directed at me, or walk away without acknowledging the idiots behind the words. I don\u2019t try to explain to anyone who doesn\u2019t matter simply because they don\u2019t matter and neither does their opinion.<\/p>\n

I really don\u2019t care about the opinions of physicians who don\u2019t treat me on a regular basis, such as the one whose first words to me were, \u201cI don\u2019t believe all that stuff about lupus patients not being able to be in the sun.\u201d Really dude? I walked out without trying to educate him. It would have been a waste of my time and pointless.<\/p>\n

However, there are physicians outside of my normal team from whom I need treatment. When seeing them I find myself in the position of having to explain and educate. I don\u2019t however, let him or her have control of my buttons. I try not to let anyone control my buttons other than me. I\u2019m not always successful, but when I feel failure on the horizon, I try the following 10 tips.<\/p>\n

    \n
  1. I state the facts about my condition.<\/li>\n
  2. I provide my current treatment plan.<\/li>\n
  3. I provide a written list of my medications and allergies.<\/li>\n
  4. I provide a list of my physicians (all of them) including names, addresses, and phone numbers.<\/li>\n
  5. If I\u2019ve had prior treatment for the problem, I provide that and the expected results<\/li>\n
  6. I offer other options if I am familiar with any.<\/li>\n
  7. I take a deep breath and remember I know more about this disease than most physicians because I live with it. I certainly know more than they can know about how the disease affects me.<\/li>\n
  8. I suggest sources for educating the physician.<\/li>\n
  9. I remain respectful.<\/li>\n
  10. I always remember that I have the right to say no to any treatment.<\/li>\n<\/ol>\n

    I wasn\u2019t always able to do this. There was a time, or two, that I totally lost it and threatened a physician with a bed pan. (I won in the diagnosis that time.) But I\u2019ve grown. I\u2019ve learned. I\u2019ve realized that they, the physicians, only know what they know and most of them sincerely want to help. I\u2019ve also realized that I know more about my condition than they ever will. When I\u2019ve done all of this I also realized that this could be my opportunity to enlighten and educate a physician. After all, I can hope that everyone, including physicians, learn from their experiences.<\/p>\n

    I may have buttons but I get to control who has access to them.<\/p>\n

    From the life and mind of Wanda M. Argersinger<\/em><\/p>\n

    \u00a9 2018 All Rights Reserved<\/em><\/p>\n

    www.lipstickliesandlupus.com<\/a><\/em><\/p>\n

    www.wandaargersinger.com<\/a><\/em><\/p>\n

    \u00a0<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

    Buttons. Buttons. We all have buttons, but do you have more buttons available for pushing because you live with lupus? Do you react strongly when people question your right to park in a disabled parking place because you don\u2019t look disabled? Do you anger having to explain your condition or needs to unknowing physicians simply… Read More Button! Button! 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