{"id":23,"date":"2015-02-26T19:18:31","date_gmt":"2015-02-26T19:18:31","guid":{"rendered":"http:\/\/lipstickliesandlupus.com\/main\/?p=23"},"modified":"2015-02-26T19:18:31","modified_gmt":"2015-02-26T19:18:31","slug":"social-media-makes-its-mark-with-lupus-patients","status":"publish","type":"post","link":"https:\/\/lipstickliesandlupus.com\/main\/?p=23","title":{"rendered":"Social Media Makes Its Mark With Lupus Patients"},"content":{"rendered":"<p>Win One for lupus patients. <a href=\"http:\/\/lipstickliesandlupus.com\/main\/wp-content\/uploads\/2015\/02\/uncertainity.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignright size-medium wp-image-24\" src=\"http:\/\/lipstickliesandlupus.com\/main\/wp-content\/uploads\/2015\/02\/uncertainity-300x300.jpg\" alt=\"uncertainity\" width=\"300\" height=\"300\" \/><\/a><\/p>\n<p>How many lupus patients wish they had the opportunity to speak with other patients? To learn from them? To share with them? To commiserate or simply feel that they are being heard?<\/p>\n<p>Most of us do.<\/p>\n<p>However, many of us don\u2019t have support groups close to home, and if the support groups exist, we are unable to travel to them.<\/p>\n<p>Well, your time has come. If you have a computer and connection to the internet, you have access to thousands of patients around the world via social media.<\/p>\n<p>One that has just come to my notice is mylupusteam.com. You can become a member of this site for free, make friends with other lupus patients, tell your story, send messages to other patients, support each other, and feel at home.<\/p>\n<p>You can search for other lupus patients in your area. Or look for patients who are your age, or who have similar symptoms. You can even build a team of supporters. You can share what treatments you\u2019ve had and how effective they were for you. Simply by telling your story you help others who read it.<\/p>\n<p>I know as a support group facilitator and lupus patient, the most helpful information I\u2019ve gotten regarding how to live with this disease has come from other patients. If you are experiencing it, there is someone who has experienced it before you and may have the answer or remedy you are looking for.<\/p>\n<p>Reach out. There is help and support if you want it.<\/p>\n<p>Sites like this have come and gone in the past. This is a nice site. Hopefully it will be around for awhile.<\/p>\n<p><em>From the life and mind of Wanda M. Argersinger<\/em><\/p>\n<p><em>\u00a9 2015 All Rights Reserved<\/em><\/p>\n<p><em><a href=\"http:\/\/www.lipstickliesandlupus.com\">www.lipstickliesandlupus.com<\/a><\/em><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Win One for lupus patients. How many lupus patients wish they had the opportunity to speak with other patients? To learn from them? To share with them? To commiserate or simply feel that they are being heard? Most of us do. However, many of us don\u2019t have support groups close to home, and if the&hellip; <a class=\"more-link\" href=\"https:\/\/lipstickliesandlupus.com\/main\/?p=23\">Read More <span class=\"screen-reader-text\">Social Media Makes Its Mark With Lupus Patients<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_newsletter_tier_id":0,"footnotes":"","jetpack_publicize_message":"","jetpack_is_tweetstorm":false,"jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false}}},"categories":[5],"tags":[28,40,60,64,66,68],"jetpack_publicize_connections":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v21.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Social Media Makes Its Mark With Lupus Patients - Lipstick, Lies, and Lupus<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Social Media Makes Its Mark With Lupus Patients - Lipstick, Lies, and Lupus\" \/>\n<meta property=\"og:description\" content=\"Win One for lupus patients. How many lupus patients wish they had the opportunity to speak with other patients? To learn from them? To share with them? To commiserate or simply feel that they are being heard? Most of us do. 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